HRGV Research Participant Registry

The HRGV Research Participant Registry was started by the The Experimental Neuropsychology Research Unit (ENRU) and Clinical Cognitive Neuroscience (CCN) Laboratories. ENRU and CCN are active Huntington’s disease research groups within the Monash Institute of Cognitive and Clinical Neurosciences, Faculty of Medicine, Nursing and Health Sciences at Monash University.

What is the Huntington's disease participants registry?

One of the most difficult aspects of research is finding enough suitable volunteers to participate in our projects. The registry provides a list of people who have expressed interest in participating in research.

How does this help research?

By growing the number of people on the registry, we can continue our world class Huntington’s Disease research, which aims to further understand brain and behaviour function in this disease.

Who is eligible?

• Men and women, 18+ years of age.
• People with a diagnosis of Huntington's disease.
• People without a diagnosis of Huntington's disease

What will you need to do?

• Complete a secure online consent form and questionnaire, found here

Where will you need to go?

By joining the registry, you agree to be contacted by phone for research. You will be contacted up to a maximum of 4 times per year and invited to participate in specific research projects.

Note:You are under no obligation to participate in any project and can choose to exit the registry at any time.

Ethics Approval: Monash University Research Ethics Committee (MUHREC): 2943.