Huntington's Disease Youth Organization

International Young Adults Congress 2020

In May 2020 the Huntington's Disease Youth Organisation (HDYO) is holding the first International Young Adult congress in Glasgow, Scotland! This event will be the largest ever gathering of young adults impacted in some way by HD. The congress will give these young people the opportunity to meet HD researchers and other young people with similar experiences.

HDYO has set up a scholarship fund to support people from all backgrounds to attend and the Stout lab at Monash University is helping!

Join them at one of the fundrasing events below or donate directly!

Questions?! Contact:

Donations / Events

Donation Page

If you are unable to attend any event or would like to show your support, we have set up a JustGiving page for donations!

Click the donation button below to be take to the page!


A Night at the Cinema for HD

Date: 2 August 2019
Time: 6.30pm
Location: Palace Dandy Cinema
26 Church Street, Brighton,
Victoria 3186

All proceeds go directly to the HDYO scholarship fund!

Over $1900 raised!

Bake Sale

Date: 22 July 2019
Time: 10am - 3.30pm
Location: Monash University Clayton Campus Centre, Wellington Road, Clayton, Victoria 3800

The bake sale has concluded. Thank you to everyone that attended!

Over $400 raised!

Melbourne Marathon

Two of our researchers will be running the a half marathon to raise money for HDYO on 13/10/2019. Show your support by donating below!

Thank you to everyone that donated, we raised over $1500!

Donate here!

About HRGV

HRGV aims to advance knowledge about the cause(s), pathogenesis, clinical and social impacts of Huntington’s disease and related disorders and to develop and implement scientific strategies promising therapeutic and psychosocial interventions.

HRGV Facebook Page

Like our Facebook page to keep up to date with our research as well as new advances in the field of Huntington's research.

Participants Required

We require participants for our numerous studies. Most studies offer some form of compensation for your time. Please take some time to look at our available studies here and help us improve treatment outcomes for people with Huntington's Disease. You can also sign up for our Participant Registry and be kept up to date with research projects that are relevant to you!

Get in Touch

Access our contacts page here.