Collectively, HRGV provides clinical and support services, and advocates on behalf of people impacted by Huntington's disease. We conduct world-class research to improve what we know about Huntington's disease and how we treat it.
Learn more about our various current research projects and how to get involved with them below. We are constantly looking for research participants to help us. If you are interested in participating in our research, we recommend you sign up to our participant registry. By registering, you will be kept informed of all relevant studies we are currently conducting. People from all clinics are welcome to join our registry. By joining you are helping us improve outcomes for all Huntington's patients.
Your participation in Huntington’s disease research can help lead to better treatments and more effective healthcare for people living with HD.
ENRU/CCN Laboratory Research Participant RegistryFinding suitable volunteers to participate in projects is one of the biggest challenges we face in our research. The registry seeks to create a list of interested participants to whom we can present relevant projects to continue improve our understanding of HD. Read More
Enroll-HDCreating a global database of people affected by HD to foster the development of treatments. Read More
Remote Assessment of Lifestyle and Cognition in HD
By understanding how exercise and sleep affect thinking skills in people with HD, we may learn how lifestyle can be managed to boost thinking performance.Read More
Apathy in Huntington's Disease
Knowing how to measure apathy effectively will help use recognise it earlier and intervene before it negatively affects people's lives.
Brain and Cognitive Function in HD: A MEG Study
The results of our study could improve the way new treatments for Huntington's disease are assessed in terms of their effects on cognition.Read More
Gut-brain Health in Huntington's Disease
By understanding the gut's role in HD, we hope to find out whether it could be a potential target for treatment.Read More
Can Non-invasive Brain Stimulation be used to Treat Apathy in Huntington's Disease?
We are testing if transcranial alternating current stimulation (tACS), a gentle non-invasive brain stimulation technique, can alter brain activity in a way that may be used to increase motivation in people with Huntington’s disease (HD).Read More
Speech Disorders in Huntington's Disease
Better understanding communication in Huntington’s disease will inform new speech therapy goals and targets.Read More
Improving the Usefulness of a Driving App in Huntington's Disease
We are looking to improve a specially designed iPad app so that it is accurate in determining driving ability for people with Huntington’s disease.sRead More