University of Melbourne Huntington's Disease Research Group
The University of Melbourne Huntington’s Disease Research Group was established by Emeritus Professor Edmond Chiu in 1989. The team, led by Dr Anita Goh, is active in conducting national and international research into improving the quality of life of families affected by HD.
Our research studies focus on:
- potential genetic discrimination against those affected by HD, and the possibility of enacting law reform to address this discrimination in Victoria.
- behavioural and psychological symptoms of HD
- international collaborative prospective HD research to monitor how the disease appears and changes over time in different people.
- clinical trials with new medications or lifestyle interventions.
Our group aims to support the HD community through research and knowledge translation, and through a focus on personal communication and a genuine interest in families with HD.