University of Melbourne Huntington's Disease Research Group

The University of Melbourne Huntington’s Disease Research Group was established by Emeritus Professor Edmond Chiu in 1989. The team, led by Dr Anita Goh, is active in conducting national and international research into improving the quality of life of families affected by HD.

Our research studies focus on:

  • potential genetic discrimination against those affected by HD, and the possibility of enacting law reform to address this discrimination in Victoria.
  • behavioural and psychological symptoms of HD
  • international collaborative prospective HD research to monitor how the disease appears and changes over time in different people.
  • clinical trials with new medications or lifestyle interventions.

Our group aims to support the HD community through research and knowledge translation, and through a focus on personal communication and a genuine interest in families with HD.

About HRGV

HRGV aims to advance knowledge about the cause(s), pathogenesis, clinical and social impacts of Huntington’s disease and related disorders and to develop and implement scientific strategies promising therapeutic and psychosocial interventions.

HRGV Facebook Page

Like our Facebook page to keep up to date with our research as well as new advances in the field of Huntington's research.

Participants Required

We require participants for our numerous studies. Most studies offer some form of compensation for your time. Please take some time to look at our available studies here and help us improve treatment outcomes for people with Huntington's Disease. You can also sign up for our Participant Registry and be kept up to date with research projects that are relevant to you!

Get in Touch

Access our contacts page here.