Huntington's Victoria

Who are we?

We are the only specialist service in Victoria for people with Huntington’s Disease (HD).We are a not for profit organisation funded both by the Victorian Government, and by donations from the public.

What do we do?


  • Provide information and advice to help people with HD and their families make decisions about their care
  • connect people to the services and support they need
  • Assist people with HD to live independently for as long as possible
  • Provide expert support for clients attending specialist HD clinics
  • Provide support for carers and families
  • Advocate to government policy makers and deliverers of services for improved access to services for people with HD
  • Educate health professionals and direct care staff about how to support people with HD
  • Increase understanding and knowledge of HD in the community
  • Support research that improves the quality of life of people affected by HD

About HRGV

HRGV aims to advance knowledge about the cause(s), pathogenesis, clinical and social impacts of Huntington’s disease and related disorders and to develop and implement scientific strategies promising therapeutic and psychosocial interventions.

HRGV Facebook Page

Like our Facebook page to keep up to date with our research as well as new advances in the field of Huntington's research.

Participants Required

We require participants for our numerous studies. Most studies offer some form of compensation for your time. Please take some time to look at our available studies here and help us improve treatment outcomes for people with Huntington's Disease. You can also sign up for our Participant Registry and be kept up to date with research projects that are relevant to you!

Get in Touch

Access our contacts page here.